The importance of newborn screening for SMA Sponsored Post ...

2 days ago· Since Edan’s SMA diagnosis and treatment, Rory and Carolyn have made advocacy an important part of their life’s work, endeavoring to get SMA on the newborn screening panel in all 50 states. In Wisconsin, where Edan received ZOLGENSMA, Carolyn wrote letters and made phone calls until she secured a meeting with the governor to advocate adding ...